The Feeling of “Falling Off The Cliff” As I Help My Child With Special Needs

The Feeling of “Falling Off The Cliff” As I Search for The Best For My Son With Special Needs - Faithtoraisenate.com - CharleneBullard.com - purposedrivencharlene.com
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The Philadelphia Inquirer published an amazing 4-part article titled “Falling Off The Cliff.” When a friend sent it to me, I immediately stopped what I was doing to read. The feature picture of the mother’s hands lovely touching her son’s face, who is noticeably blind, drew me in. It reminded me of my Nate, my son, who is blind as well.

As I read the first few paragraphs, I could feel pain run through my body.  I couldn’t continue, as tears streamed down my face, blurring the words. I couldn’t go on. It was too heart-wrenching to continue. It took me a week to complete Part 1 and the remaining sections.

What made me cry and stop reading?

Well, it was the painful truth that I could relate to what I was reading. The stories from parents and family members about waiting for government funding and services is all too familiar. The mother who removed her son from two residential facilities for abuse, hurt my heart.  Also, the problems and issues within the residential facilities, were stories that I too have experienced. It all struck a nerve with me, especially since I am rethinking Nate’s placement in his residential facility.

The feeling of “falling of a cliff” is real.  It fills me every day.  I am not happy with Nate’s residential facility. I am not satisfied with the system that is place to care for individuals with special needs. It hurts my heart for all of us parents or caregivers who are in this precarious situation.

I cry daily, as I feel lost and think of ways to care for my son if I remove him from his residential facility.   I also pray, begging God to help me and lead me to do what is right for my son.

This system is broken. It needs to be repaired. Those in charge need to do a better job of helping individuals with special needs to have a better life, and not feel like I do……. as if I am “falling off a cliff.”

Please read the article. (Click here!)

Faithtoraisenate.com - CharleneBullard.com - Purposedrivencharlene.com

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  1. 2
    dancingpalmtrees

    #1 Hugs. Even though I am not a parent since our parents deaths I have fought for my brother Stephen. It’s a battle that we must win. There’s hope but in order for the system to change family members must put demands on the system. We must forget racial and religious differences and band together for the sake of our family members.
    You have read my blog posts regarding being an Autism Activist Advocate for many years. Through my blog you’ve seen me not only dispute with his group home residence but demonstrate, march and protest up to and including the Gov. Cuomo office. Yes I have gone up to the state capitol with Fellow advocates. As you can see from my rough and ready personality I’m not afraid to raise my voice.
    Not only was I a soldier in the U.S. ARMY. I’m a Autism Warrior for Stephen. Not afraid to get down in the trenches. I’m always prepared for battle. Believe me that over the years things have gotten ugly but I’m a tough cookie who speaks her mind.

    We must make the agencies, organizations and the government accountable. Nobody will do that for us. Action is needed. We speak. We advocate for those who have no voice.

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