Sometimes I can complain!
Read my post, 3 Things That Need to Change For People With Special Needs, and you will see me venting about how things need to change.
At times, I call out to God with my list of complaints. I share all the things that are wrong with the world, with raising a child with special needs, and more. Then there is a prick of my spirit that says to me….
“Don’t you see the many blessings of God?”
With my head lowered, I feel guilt, because I spend so much time complaining that the thought of acknowledging God’s many blessings escapes me. And I have definitely been blessed on this journey of raising a child with special needs.
From the beginning, when Nate was born and I learned that my child had a rare congenital defect, God surrounded us with people who were a big help. There was one nurse, Webra Price, whose name I still remember after 22 years. She showed so much kindness to our family during that process. Her care for us was a blessing, and it will always be etched in my mind.
Secondly, the next blessing was Nate’s early intervention therapy team. These therapist began working in our home when Nate was 6 months of age. Providing services for Nate wasn’t easy. My baby would cry uncontrollably as the therapist worked with him. Yet, the staff of occupational therapist, physical therapist, hearing and visual therapist, never gave up on him. They were persistent, which made him grow. I attest their hard work and pushing Nate, to his development in the later years.
My next blessing came from a wonderful organization, the Pennsylvania Deaf-Blind Project. Every year they hold a Family Learning Conference for families with children who are deaf and blind. This organization blessed me by providing an environment where I learned how to care for my child. They have also connected me to parents, like myself, who are raising children who are deaf/blind. The staff is a blessing because they go above and beyond to support parents and provide them with the resources they need.
Next, I must acknowledge the blessing of Nate’s education. During his 21 years of school, God blessed him with a caring group of teachers and staff. They were beyond supportive, especially when Nate’s behavior became difficult. Their hard work and dedication helped my son receive the services from the school district to help him in his classroom. It also helped me to receive support for him at home. Without their help and dedication, I truly believe Nate and I would not be where we are now.
Lastly, I must mention, Nate’s long time pediatrician, Dr. Kathleen Zsolway. I am not sure if she knows this, but she will always hold a special place in my heart. This doctor is professional, kind, caring, and dedicated to her patients.
There were times I spoke about Nate’s behavior problems and tears would spill from my eyes. She kindly passed me tissue and sympathized with my pain. She even connected me to the right people to get Nate the help he needed.
When Nate turned 18, I knew it was time to move out of the pediatric setting and leaving her was hard. Yet, I will always be appreciative of her care through the years. She is the best and a blessing.
And as I write this, I am smiling….and tearing. I must say, God has blessed me.
And I know, sometimes it is difficult to see those blessings when there is so much pain and hardship. Yet, we must look for them and acknowledge them. For when we do, we have the hope and love of God, that will help us to keep moving as we raise our children with special needs.
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